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We are happy to report that on Thursday, June 14, Representatives Peter King (R-NY) and Kathy Castor (D-FL) introduced H.R. 6114, the Metastatic Breast Cancer Access to Care Act. Thanks to NBCC’s outstanding advocates the bill was introduced with 35 original cosponsors.
Since 1991, the National Breast Cancer Coalition has focused on ensuring that all individuals at risk for or with breast cancer have access to quality health care. Waiving these waiting periods helps assure that women and men living with metastatic breast cancer have access to the support and medical care they deserve as quickly as possible.
Read the full statement here: http://www.breastcancerdeadline2020.org/…/national-breast-c…
The donation was announced at a dinner during the Maine Fraternal Order of Eagles State Convention in Brewer, on June 9, 2018. All of us at MBCC are so grateful to the members of the New Gloucester Eagles, who work hard to raise funds for MBCC every year. Two of our volunteers attended the dinner and were so pleased to meet many of the New Gloucester Eagles members.
We would also like to thank Mark Cable, head of fundraising for Twist and Shoot, who was not present for the photo.
Photo, left to right: Marissa Crooker, Sandy Hubbard, Mike Fickett, Carol Beagan (MBCC treasurer), Dave Marston, Dennis Crooker, Deanna DeRocco, Trina DeMerchant, Christine Haiss (MBCC Board member), Jerry DeMerchant, Lillian Strait
The Maine Breast Cancer Coalition is heartbroken at the recent loss of long-time volunteer member, Carmen Darkis. When Carmen was 19 years old, her mother was diagnosed with breast cancer and passed away at the age of 62, just four short years later. It was at this time that cancer changed Carmen’s life forever.
Carmen’s connection to breast cancer became personal when she was diagnosed in 1988. Carmen had a mastectomy and soon after surgery, joined the support group “Encore” at the YWCA. In her own words “the support group helped me cope, educated me about my cancer, enabled me to make new friendships…It was very much a learning experience for me and I wasn’t afraid anymore to talk about breast cancer. It also helped me cope with life at my workplace.”
In 1993, Carmen was again diagnosed, this time with stage 4 metastatic breast cancer and despite being in constant treatment, in 1998 she decided that it was time to stop talking about breast cancer and do something about it. She signed up as a volunteer member of the Maine Breast Cancer Coalition (MBCC). During her 20 years as a faithful MBCC advocate and volunteer, Carmen was actively involved in the work of the Coalition. For 12 years, she held the office of secretary, and when the Maine Breast Cancer Coalition established our Support Service Fund in 2000, Carmen - passionate about the mission to help financially assist women and men who were diagnosed with breast cancer or had other breast health related needs - jumped in with both feet. She found great fulfillment in sitting on the Support Service Fund Committee which oversaw that fund - right up until metastatic breast cancer robbed her from us earlier this month.
During her time with the Maine Breast Cancer Coalition, Carmen made three trips to the National Breast Cancer Coalition’s Advocate Conference in Washington, D.C. and lobbied on Capitol Hill to encourage Maine’s congressional delegation to enact policies impactful to the lives of those living with and at risk of breast cancer.
In 2012, Carmen was the recipient of the "Lifetime Inspiration Award", awarded by the Maine Cancer Foundation to "an individual who has achieved success above and beyond the ordinary in the fight against breast cancer in Maine." She was nominated by long-time friend, Robin Long of Caring Connections at the Bangor Y. Robin had this to say when she nominated Carmen in 2012: “For close to 20 years Carmen has been on some kind of breast cancer treatment. I find her inspirational because, in her own words, ‘I don't let the cancer live my life, I live my life because I love being alive.’ In spite of being in treatment almost continously for the last two decades, she has done the things she enjoys. She is always willing to speak with someone who has been newly diagnosed with metastatic disease, providing a postive and hopeful message.”
This is just who Carmen was…positive…hopeful…strong. Even though she had no idea where her strength came from, she was a miracle who beat the odds (and 3-year average life expectancy for being diagnosed stage 4 metastatic) by living with metastatic breast cancer for 25 years. She didn’t just live, she thrived. She was actively involved in our work right up until the very end and will be greatly missed when we convene for our next face-to-face meeting in June. There is no doubt that looking ahead, much of our MBCC mission will be compelled forward under the motivation of being “for Carmen.”
Finally, we would like to leave you with a message to anyone out there who has been diagnosed with stage 4 metastatic breast cancer from Carmen herself: “Because there are so many different kinds of breast cancers, everybody is so different. What is right for one woman might not be right for another. Communicate with your oncologist. Let him/her know how you feel and be your own advocate or if you can’t, let a family member be one for you. I believe that everyone should live their life one day at a time and to the fullest, and always remember that quality of life means more than quantity.” Carmen fully embodied this message every single day of her life – before and after her metastatic breast cancer diagnosis - and we will continue to carry on our mission in her memory and honor.
Event Location (start and end): Jeff's Catering, 15 Littlefield Way, Brewer. Learn more here.
Breast cancer patients need support as they navigate the steps of survivorship.
If you have walked the journey as a breast cancer survivor, let your voice be heard
at a forum to help envision, create, and move ahead a new breast cancer survivorship
EMMC Cancer Care would like to know what survivorship topics are important to you. From diet and exercise to mental, emotional, and sexual health. What are you looking for in education, support groups, and community programs?
Please share your thoughts at EMMC Cancer Care’s free community discussion with A. Merrill Garrett, MD, oncologist, EMMC Cancer Care, and the team of doctors, nurse practitioners, and nurses caring for breast cancer survivors.
Light refreshments will be served. Event is 6:00-7:30 pm. Doors open at 5:30 pm. Registration is required by filling out the form here or by calling 973-7483.
You can read more about about “Paws for the Cause” and see photos from the event on the Medomak Valley All-Sports Boosters Facebook page.
All of us at Maine Breast Cancer Coalition want to thank all the athletes, their parents, coaches, the booster organizers and all the other volunteers who made this event possible!
Photo, left to right: John Murphy and Gayle Murphy, organizers and sponsors; Matt Lash, MVHS athletic director; Michelle DePatie, Boosters president; Pam Sirois, Maine Breast Cancer Coalition board chair; Carol Beagan, MBCC treasurer
During this past October, Breast Cancer Awareness Month, Maine Staffing Group invited their flaggers in Maine and New Hampshire to participate in a Pink Hard Hat fundraising campaign. All proceeds from the campaign were matched by Project Flagging and were donated to the Maine Breast Cancer Coalition in Sharon’s name. All flaggers received a pink hard hat to wear for the month of October to show their support.
Maine Breast Cancer Coalition is grateful for the generosity of Maine Staffing Group and all of the flaggers who took part in the Project Flagging Pink Hard Hat campaign. Our hearts go out to Sharon Burns’s family and friends. We are honored to accept the $5,000 donation to our Support Service Fund in Sharon's name.
Photo, left to right: Richard Holden, Maine Staffing Group Managing Partner; Ursula H. Bernier, Northern Regional Manager; Barbara Mahoney, Managing Partner; Laurel Bezanson, MBCC volunteer; Mark Burns, Managing Partner; Shannon Strickland, Southern Regional Manager
The students took part in a one-mile walk/run and collected pledges totaling $852.39! The Maine Breast Cancer Coalition volunteers who accepted the check were so impressed with these young people who raised such a big donation for our Support Service Fund. Read more here.
The conference continues to provide cancer survivors, caregivers, health care professionals and interested community members about information and resources. It is also is a day of healing, hope, health and inspiration for all.
The conference will run from 9 a.m.–3:15 p.m., with registration beginning at 8. Lunch is available at no charge to all participants and there will also be door prizes. There will be representatives from health care and social service organizations.
For more information or to register, contact the Beth C. Wright Cancer Resource Center at 664-0339 or email@example.com.
In addition to a fantastic buffet lunch, guests will enjoy fabulous door prizes and amazing guest speakers. They will leave the event empowered and equipped with information on how to do more for the breast cancer cause than buy pink ribbon products. Attendees will also leave the event prepared to “Think BEYOND Pink” all throughout the year with great breast health resources and information.
To register or for more information, please call or email Bethany Zell, Pink Aroostook Director, by Wednesday, October 25, at 498.1361 or firstname.lastname@example.org.
All of us at MBCC are so grateful for the Eagles Club members' hard work in raising
funds for our organization!
Photo left to right: Ro LeGasse, Support Service Fund program assistant; Carol Beagan, MBCC treasurer and SSF committee member; Deidra Harvey, chairperson for MBCC for RFOE, her mother Janet Magoon, member of RFOE, and her father, David Magoon, RFOE Trustee.
Northeast Air kicked off Breast Cancer Awareness Month by presenting representatives from Maine Breast Cancer Coalition with a check from the company's fundraising efforts. Team NEA was able to raise $810 in employee donations for the fight against breast cancer. With the matching donation from co-owners Henry and Linda Laughlin, the grand total donation was $1,620 for our Support Service Fund.
We were so pleased to meet the generous owners and employees of Northeast Air. WMTW Channel 8 was there to video the event.
Photo, left to right: Carmen Darkis, Support Service Fund Committee member; Carol Beagan, MBCC treasurer and Support Service Fund Committee member (both volunteer positions); NEA co-owner Henry Laughlin
For information call 207-478-0388 or email Brooke Ismail at email@example.com
The members of the Maine Breast Cancer Coalition were heartbroken to hear that Penny died on Saturday, July 22, 2017, at the Androscoggin Hospice House, after living with metastatic breast cancer for several years. We are so thankful for the time we spent with Penny and for her dedication to the Maine Breast Cancer Coalition. We extend our deepest condolences to Penny's husband, Kevin, her son, Chris, stepdaughter, Kate, and all of her extended family and friends.
We were all very blessed to have known her and will continue to advocate for all those living with and at risk of breast cancer to honor her memory.
You may read the obituary and leave condolence messages here.
In addition, for the fourth consecutive year, during October, Maine Hannaford customers will be able to donate $2 or $5 at the register of their local stores, with all proceeds going to the Support Service Fund.
Maine Breast Cancer Coalition is grateful to Hannaford Supermarkets for their generous support, which makes a difference in the lives of Maine residents in need.
Photo, left to right: Christine Haiss, MBCC Board and Support Service Fund Committee member; John Murphy, Vice President, Sales, Douglas Dynamics; Carol Beagan, MBCC treasurer and Support Service Fund Committee member
Photo, left to right: Bethany Zell, MBCC President; Jaclyn Silk, Bangor Savings Bank Assistant Vice President and branch manager of the State Street branch; Carol Beagan, MBCC Treasurer.
Currently, Medicare and many private insurance policies fail to cover the costs of the daily compression supplies people with lymphedema need to control their swelling. People who can’t afford these supplies are left with worsening lymphedema, which can lead to infections and even long-term disability.
MBCC President Bethany Zell wrote, "Breast Cancer Deadline 2020® is the National Breast Cancer Coalition's global initiative to know how to end breast cancer by January 1, 2020. As leaders in the breast cancer movement and supporters of Breast Cancer Deadline 2020®, we are committed to being a part of this important work."
Show your support and join us in our efforts! Become a member or renew your annual membership in the Maine Breast Cancer Coalition.
Annual memberships supply critical funding for our volunteer-based
non-profit organization’s general operating costs and make it possible for us
to continue our important work. Annual memberships beginning at only $15 are available
at various levels for both individuals and businesses.
to join us online
... or click here for a printable form if you wish to mail a check for your membership.
If you have recently become a member or renewed your membership, many thanks for your help.
For the fourth consecutive year, during October, Maine Hannaford customers will be able to donate $2 or $5 at the register of their local stores to support the Maine Breast Cancer Coalition’s Support Service Fund. Read more.
The Maine Coalition to Fight Prostate Cancer, a statewide, all volunteer nonprofit organization, (www.mcfpc.org) is preparing a series of 30-minute videos about the quality of life after cancer treatment. We want to explore the way cancer affects people’s lives and feelings and learn from the varied experiences of the many who have undergone treatment. The first video will feature those whose treatments have concluded and are in remission. The second will consult professionals who work with survivors. The third will deal with those whose treatments are ongoing. The videos will be shown statewide in Maine and will be available on the MCFPC website.
MCFPC is reaching out to people whose lives have been impacted by cancer and is asking them to complete a survey. (The link to the survey is available on the home page of its website: www.mcfpc.org.) The survey is not intended as academic research. Rather, it will inform our program and help us to illustrate and understand the concerns, needs, and successes of many different people. Responses to the survey will be totally anonymous to us and to our viewers and participants will not be identified in any way. Survey results will be reported on the website and will be referenced on the program itself.
Maine Breast Cancer Coalition volunteers attended the Fraternal Order of Eagles annual banquet in Skowhegan and accepted a check for $5,746. Maine Eagles Clubs are long-term supporters of the Maine Breast Cancer Coalition. We are grateful for their ongoing support!
Photo, left to right: MBCC volunteers Roberta Wessel and Nancy Beadling; Tom Sousa, president of Rumford Eagles
The Dr. Susan Love Research Foundation launched the opening survey for the Metastatic Breast Cancer Collateral Damage Project. If you have metastatic breast cancer, you can play a role in improving quality of life for people with this disease by taking 15 minutes to complete a five-question survey.
The survey is a critical first step in documenting the full extent of collateral
damage caused by the disease or its treatment. The long-term goal is to develop a
set of recommendations that will improve the quality of life for people living with
metastatic breast cancer.
TAKE THE SURVEY
To purchase: This double CD set is available for only $19.99 at all Bull Moose Music locations statewide. It can also be ordered from Maine Breast Cancer Coalition directly. Download the order form here.
Thank you to those who sponsored and attended this great community event! Congratulations to Lori from Medway for winning the Maine Breast Cancer Coalition's drawing for a Pink Album.
In 2013, Mike Carroll wrote about the story behind the pink truck and his company's goal to support Maine Breast Cancer Coalition's work. Read his story here.
Maine Breast Cancer Coalition is grateful for F. R. Carroll's generosity and ongoing support!
For the second consecutive year, during October, Maine Hannaford customers were able to donate $2 or $5 at the register of their local stores, raising $3,320 for the Maine Breast Cancer Coalition’s Support Service Fund. In addition, the Bangor Hannaford office raised $1,180 in donations. Hannaford matched $2,500 of these donations, bringing the total to $7,000.
If you have a pink ribbon-plated car, be on the lookout for a special THANK YOU note from the Maine Breast Cancer Coalition … coming soon to YOUR CAR!!!
All services are free of charge. SHARE provides telephone support, support groups, educational programs, and advocacy activities.
TOLL-FREE HELPLINE: 844-ASK-SHARE (844-275-7427)
If you or someone you know is in need of diagnostic services or has been diagnosed with breast cancer and lives in Penobscot, Piscataquis, or Knox County, the Ride to Wellness program can help ease some of the burden and stress.
There is no income level requirement. For more information call The Lynx at 973-3695 or 1-866-853-5969.
The Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.
Click here to join the HOW Study or find out more.