The Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.
What is the Health of Women Study?
From the Dr. Susan Love Research Foundation website:
"The majority of women who get breast cancer have none of the known clinical risk factors. This means we don’t know what causes breast cancer or how to prevent it.
The HOW Study is a first-of-its-kind international online study for women and men with and without a history of breast cancer. We will collect information about your health, your job, your diet, and your family history, among other topics that can help us get a better understanding of breast cancer and its potential causes.
The HOW Study will track hundreds of thousands of women (and men) over time
to learn what causes breast cancer, and how to prevent it. HOW will also study long-term
breast cancer survivors in order to get a better understanding of how they are beating
the odds. This is the first time a study of this size and magnitude is collecting
data entirely online. We are excited by this approach because it will allow us to
ask every question any of us (including you) ever wanted answered. We believe this
is the first study that will allow the participants to submit questions they want
studied, and we are eager to hear what you want us to do!
Once you sign up to become a member of the HOW Study, you will receive periodic questionnaires that will ask questions about different health and exposure topics. Each new questionnaire will be released in a "Call to Action" email and will address a specific topic, such as reproductive health, cancer history (for those with breast cancer), environmental exposures, and much, much more. Each questionnaire should take about 60-90 minutes to fill out, and you will get a new one every three to four months.
This is a partnership, and we need you for the long haul. The more questionnaires you fill out, the more information we will have that can help us have a better understanding of why women get breast cancer."
Click here to join the HOW Study or find out more.
Currently, Medicare and many private insurance policies fail to cover the costs of the daily compression supplies people with lymphedema need to control their swelling. People who can’t afford these supplies are left with worsening lymphedema, which can lead to infections and even long-term disability.
MBCC President Bethany Zell wrote,
"Breast Cancer Deadline 2020® is the National Breast Cancer Coalition's global initiative to know how to end breast cancer by January 1, 2020. As leaders in the breast cancer movement and supporters of Breast Cancer Deadline 2020®, we are committed to being a part of this important work. As leaders, we are also raising money to support the plan of action to achieve our goal of ending breast cancer."
Click here to read more or to make a donation to help Bethany and Laurel atttend the Summit.
Photo: MBCC volunteer Gail Murphy, fundraiser coordinator; Matt Howe, owner of of Sushi Maine