The Study is being conducted at the Dr. Susan Love Research Foundation, in collaboration with City of Hope Comprehensive Cancer Center.
What is the Health of Women Study?
From the Dr. Susan Love Research Foundation website:
"The majority of women who get breast cancer have none of the known clinical risk factors. This means we don’t know what causes breast cancer or how to prevent it.
The HOW Study is a first-of-its-kind international online study for women and men with and without a history of breast cancer. We will collect information about your health, your job, your diet, and your family history, among other topics that can help us get a better understanding of breast cancer and its potential causes.
The HOW Study will track hundreds of thousands of women (and men) over time
to learn what causes breast cancer, and how to prevent it. HOW will also study long-term
breast cancer survivors in order to get a better understanding of how they are beating
the odds. This is the first time a study of this size and magnitude is collecting
data entirely online. We are excited by this approach because it will allow us to
ask every question any of us (including you) ever wanted answered. We believe this
is the first study that will allow the participants to submit questions they want
studied, and we are eager to hear what you want us to do!
Once you sign up to become a member of the HOW Study, you will receive periodic questionnaires that will ask questions about different health and exposure topics. Each new questionnaire will be released in a "Call to Action" email and will address a specific topic, such as reproductive health, cancer history (for those with breast cancer), environmental exposures, and much, much more. Each questionnaire should take about 60-90 minutes to fill out, and you will get a new one every three to four months.
This is a partnership, and we need you for the long haul. The more questionnaires you fill out, the more information we will have that can help us have a better understanding of why women get breast cancer."
Click here to join the HOW Study or find out more.
The donation was announced at a dinner during the Maine Fraternal Order of Eagles State Convention in Brewer, on June 9, 2018. All of us at MBCC are so grateful to the members of the New Gloucester Eagles, who work hard to raise funds for MBCC every year. Two of our volunteers attended the dinner and were so pleased to meet many of the New Gloucester Eagles members.
We would also like to thank Mark Cable, head of fundraising for Twist and Shoot, who was not present for the photo.
Photo, left to right: Marissa Crooker, Sandy Hubbard, Mike Fickett, Carol Beagan (MBCC treasurer), Dave Marston, Dennis Crooker, Deanna DeRocco, Trina DeMerchant, Christine Haiss (MBCC Board member), Jerry DeMerchant, Lillian Strait
The Maine Breast Cancer Coalition is heartbroken at the recent loss of long-time volunteer member, Carmen Darkis. When Carmen was 19 years old, her mother was diagnosed with breast cancer and passed away at the age of 62, just four short years later. It was at this time that cancer changed Carmen’s life forever.
Carmen’s connection to breast cancer became personal when she was diagnosed in 1988. Carmen had a mastectomy and soon after surgery, joined the support group “Encore” at the YWCA. In her own words “the support group helped me cope, educated me about my cancer, enabled me to make new friendships…It was very much a learning experience for me and I wasn’t afraid anymore to talk about breast cancer. It also helped me cope with life at my workplace.”
In 1993, Carmen was again diagnosed, this time with stage 4 metastatic breast cancer and despite being in constant treatment, in 1998 she decided that it was time to stop talking about breast cancer and do something about it. She signed up as a volunteer member of the Maine Breast Cancer Coalition (MBCC). During her 20 years as a faithful MBCC advocate and volunteer, Carmen was actively involved in the work of the Coalition. For 12 years, she held the office of secretary, and when the Maine Breast Cancer Coalition established our Support Service Fund in 2000, Carmen - passionate about the mission to help financially assist women and men who were diagnosed with breast cancer or had other breast health related needs - jumped in with both feet. She found great fulfillment in sitting on the Support Service Fund Committee which oversaw that fund - right up until metastatic breast cancer robbed her from us earlier this month.
During her time with the Maine Breast Cancer Coalition, Carmen made three trips to the National Breast Cancer Coalition’s Advocate Conference in Washington, D.C. and lobbied on Capitol Hill to encourage Maine’s congressional delegation to enact policies impactful to the lives of those living with and at risk of breast cancer.
In 2012, Carmen was the recipient of the "Lifetime Inspiration Award", awarded by the Maine Cancer Foundation to "an individual who has achieved success above and beyond the ordinary in the fight against breast cancer in Maine." She was nominated by long-time friend, Robin Long of Caring Connections at the Bangor Y. Robin had this to say when she nominated Carmen in 2012: “For close to 20 years Carmen has been on some kind of breast cancer treatment. I find her inspirational because, in her own words, ‘I don't let the cancer live my life, I live my life because I love being alive.’ In spite of being in treatment almost continously for the last two decades, she has done the things she enjoys. She is always willing to speak with someone who has been newly diagnosed with metastatic disease, providing a postive and hopeful message.”
This is just who Carmen was…positive…hopeful…strong. Even though she had no idea where her strength came from, she was a miracle who beat the odds (and 3-year average life expectancy for being diagnosed stage 4 metastatic) by living with metastatic breast cancer for 25 years. She didn’t just live, she thrived. She was actively involved in our work right up until the very end and will be greatly missed when we convene for our next face-to-face meeting in June. There is no doubt that looking ahead, much of our MBCC mission will be compelled forward under the motivation of being “for Carmen.”
Finally, we would like to leave you with a message to anyone out there who has been diagnosed with stage 4 metastatic breast cancer from Carmen herself: “Because there are so many different kinds of breast cancers, everybody is so different. What is right for one woman might not be right for another. Communicate with your oncologist. Let him/her know how you feel and be your own advocate or if you can’t, let a family member be one for you. I believe that everyone should live their life one day at a time and to the fullest, and always remember that quality of life means more than quantity.” Carmen fully embodied this message every single day of her life – before and after her metastatic breast cancer diagnosis - and we will continue to carry on our mission in her memory and honor.
Event Location (start and end): Jeff's Catering, 15 Littlefield Way, Brewer. Learn more here.
Breast cancer patients need support as they navigate the steps of survivorship.
If you have walked the journey as a breast cancer survivor, let your voice be heard
at a forum to help envision, create, and move ahead a new breast cancer survivorship
EMMC Cancer Care would like to know what survivorship topics are important to you. From diet and exercise to mental, emotional, and sexual health. What are you looking for in education, support groups, and community programs?
Please share your thoughts at EMMC Cancer Care’s free community discussion with A. Merrill Garrett, MD, oncologist, EMMC Cancer Care, and the team of doctors, nurse practitioners, and nurses caring for breast cancer survivors.
Light refreshments will be served. Event is 6:00-7:30 pm. Doors open at 5:30 pm. Registration is required by filling out the form here or by calling 973-7483.